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Our Western Adventure with Juniper

Things have been pretty quiet on this page for a few months. The biggest factor was I was in full blown planning and packing mode for our summer adventure to the western USA. It was an incredible...

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We Are Not Alone

Nearly 3 years ago, I shared with all of you how my daughter was injured while in the care of a home health worker. Getting that call was one of my worst fears. It was very difficult leaving my...

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Giving Tuesday

Giving Tuesday is a movement that was created in 2012, and has become an international day of giving. It follows Black Friday and Cyber Monday – two very busy shopping days in North America. I want to...

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Happy 9th Birthday Ladybug!!

December 3 – not only is it International Day of Persons with Disabilities, it also happens to be my Ladybugs 9th birthday. Two incredible reasons to celebrate this magical day. I think about this day...

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Secure Your Own Oxygen Mask First

Anyone who has ever flown anywhere, knows that before the flight even takes off, the attendants go over the safety check lists and always tell you to secure your own oxygen mask first. Until recently I...

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Myths and Facts

I will preface this post by saying the tumor that was removed from my breast is benign (not cancer)! YAY!!! The lymph nodes in the area are still quite enlarged (since the first scan last September) so...

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October is Dwarfism Awareness Month

October is known internationally as Dwarfism Awareness month. If I’m going to be completely honest, this was never even on my radar until this past September. I really didn’t know that much about...

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LADYBUG IS 10 YEARS OLD!!

Today marks a massive milestone for us. On December 3, 2009 my beautiful little Ladybug was born. She is now 10 years old! It has been an adventurous 10 years, full of heart breaks and triumphs, and...

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Just be Kind

Friday March 13, 2020 was the last semi “normal” day I can remember. The kids were still in school, and I was preparing for the 2 weeks off due to the Coronavirus. As everyone is well aware, 2 weeks...

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Neurology Update

Accessibility Adoption AFO's Back to School C.O.R.D Canadian Organization for Rare Disorders CDG CDG Awareness CDG Family Network CDG SLC35A2 Children Congenital Disorders of Glycosylation Doctor...

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