Clik here to view.
Night Terrors
The house is quiet and still. Both kids are sound asleep, I’m sound asleep, even the dog is snoring. Then, out of nowhere I was startled awake by the most horrific bone chilling, blood curdling...
View ArticleClik here to view.
Music is what feelings sound like
It has always amazed me how Ladybug responds to music. From the time she’d move around in my tummy when an upbeat song was played, to dancing around the house in mommy’s arms as a baby. Now one of her...
View ArticleClik here to view.
Supporting Epilepsy – Purple Day 2015
Two years ago today March 26, 2013 was the first official Purple Day. For those of you who aren’t familiar with Purple Day, it was created by a young girl – Cassidy Megan from Nova Scotia, Canada in...
View ArticleClik here to view.
Healthy amidst an outbreak
From all our hospital stays over the years, it’s hard to believe we would be here while Ladybug is healthy. No IV’s beeping at all hours of the night, no surgeries, no pokes, no fevers. It’s a whole...
View ArticleClik here to view.
Shiny New Ear Tubes
Ladybug is out of surgery and has a brand new pair of ear tubes. Although there is a lot of discrepancy regarding children actually needing ear tubes, Ladybug proved these past few months that for...
View ArticleClik here to view.
Making our home accessible
This week has been a very busy one, and it’s only Wednesday. On Monday Ladybug went in to be fitted for a fancy new orthotic. It basically wears like a vest, a very soft yet sturdy and supportive...
View ArticleClik here to view.
EEG Results
A few weeks ago we finally got Ladybugs 48 hour EEG results. It was a lot to digest, and I wanted to try to understand as best I could before I gave everyone the update. Ladybug’s neurologist...
View ArticleClik here to view.
Back at Mac
On Friday morning Ladybug was admitted to the local children’s hospital. She had been battling a bad chest cold for nearly a week and it just kept getting worse. She had a high fever that wouldn’t go...
View ArticleClik here to view.
Home sweet home
Just a quick update to let everyone know that Ladybug is now home. She’s still pretty weak but otherwise getting better everyday. On the down side, my little Monkey and I are now fighting whatever...
View ArticleClik here to view.
100th Little Ladybug Hugs Blog Post Celebration!
This is such a monumental post for me. It’s pretty hard to believe that 99 blog posts ago my little bug was fighting for her life in the hospital. Starting this blog has not only been an amazing...
View ArticleClik here to view.
Where did the time go?
I really can’t believe it’s October already. I feel like I just announced that we’re expecting our third child and then bam I’m now 30 weeks into the pregnancy. The past few months have been really...
View ArticleClik here to view.
Happier than ever
It always amazes me how so much can change in a couple of months. Back in June I wrote a post entitled EEG Results. I talked about how Ladybug was diagnosed with Lennox-Gaustaut Syndrome a rare form...
View ArticleClik here to view.
We are officially a party of 5
I am so happy to announce that on December 7, 2015 we welcomed the newest member of our family. A beautiful baby boy. I couldn’t have asked for a better baby, and both Ladybug and my little man have...
View ArticleClik here to view.
5 Tips When Hiring a Nurse/Home Health-Care Worker For Your Child With...
Last week while in the care of a home health-care worker Ladybug fell off her change table and hit her head on an open drawer. She had a cut on her eyebrow, bleeding nose, loosened her two front teeth...
View ArticleClik here to view.
Flashback Friday – Valentines Day 2010
It’s crazy to think that this picture was taken just 6 short years ago – she was only 2 months old. Ladybug was in the hospital for “Failure to Thrive”, (A common diagnosis for children who, for no...
View ArticleClik here to view.
In Honour of Rare Disease Day – Help Me Get CDG Recognized as an Official Day.
Today, February 29th 2016 marks the 9th International Rare Disease Day. 5 years ago I published this blog post dedicated to Rare Disease Day. When my daughter was first diagnosed with Congenital...
View ArticleClik here to view.
No Room at the Inn, or No Beds on the Ward
It’s 06:50, all I hear are IV’s that are alarming, a detoxing kid screaming obscenities in the next room, and the early morning bustle of the nurses. Friday, Ladybug came home from school very...
View ArticleClik here to view.
That’s More Like It
We are home!!! As you can tell from the picture above Ladybug is very, very happy to be home. The final consensus was that she had a severe ear infection. Ladybug woke up yesterday and I noticed...
View ArticleClik here to view.
Sneak Peek
Now that Ladybug is home and on the mend, we can now focus on some very exciting things happening today and all week. Here is a little sneak peek of what’s to come.
View ArticleClik here to view.
The Dance Ability Movement
When I was pregnant and found out we were having a little girl, I envisioned her jumping around in a little tutu taking ballet classes. Even after we received Ladybugs prognosis, I continued to have...
View Article