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Happy 1st Day of School 2016 – Year 3
I just put my little Ladybug on the bus to head off to her first day of school. She was very excited last night when I told her she was going to school the next day. I envisioned her waking up with a...
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Beautiful Lengths
Anyone who has seen Ladybug, knows that she has the most beautiful hair. Hair that is usually adorned with adorable bows. This past summer that same beautiful hair, was becoming increasingly difficult...
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Tenacity and Resilience
Last week I came across an amazing video called The Brain that Changed. It shares the story of a man in Australia who has Cerebral Palsy. His family pushed the known boundaries and explored...
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Happy 7th Birthday Beautiful
7 years ago today we welcomed our itty bitty little Ladybug into the world. She was born at 03:56 and in true Ladybug fashion – made a very grand entrance after a very long labour. Knowing her now I...
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World CDG Day
Today, May 16th 2017, marks the 1st official World CDG Day. Ladybug was diagnosed with Congenital Disorders of Glycosylation in October 2010. I remember every single detail of the moment the doctor...
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Emergency Surgery
Last night Ladybug was sent to the OR for emergency surgery to fix a bowel obstruction. Monday started like any other day. Ladybug woke up and was her typical happy, chatty self. By Monday evening it...
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Wait and See.
Let’s just wait and see. A pretty common sentence around here these past few days. As frustrating as it can be, I’m trying to remain positive and remember all the gains she’s had thus far. Ladybug’s...
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Slowly But Surely
Things are moving along here at Mac Kids. Ladybug had her PICC line put in on Thursday afternoon, it was a huge relief and meant no more pokes for daily blood work and no new IV lines. It also couldn’t...
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There’s No Place Like Home
Within a matter of seconds my beautiful little Ladybug knew she was back home, and is finally able to have a comfy nap.
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Back for a Tune-up
Yesterday my lil Ladybug started to vomit a lovely shade of green, a call to the surgeon brought us back to the children’s hospital last night. Combine the fact that the ER was empty and the surgery...
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Wait A Little Bit Then Wait Some More
I haven’t really had much of an update since we were re-admitted Tuesday until now. The consensus is that Ladybug has a partial blockage, higher up in her bowels. Yesterday she went back to have...
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Though She Be But Little, She Is Fierce!
This morning, Ladybugs surgery team had a big meeting with all of the surgeons from the children’s hospital, and 2 from out of town. They went over her tummy x-rays, ultrasounds, and the CAT scan. They...
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A Very Long 4 Hours
Ladybug was brought in to the OR for her surgery at 08:45 this morning. By 10:45 I was hoping for someone to come get me – but no one did. 11:45 – still no word. Finally at 12:45 the surgeon came out...
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Slow and Steady
Things are slowly getting better here – Ladybug is healing nicely from her Surgery a week ago, the incisions look impeccable, and according to the last contrast study there are no more obstructions....
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Finding Our Groove
This update is a little late but it has honestly been very hectic these past couple weeks. Ladybug was discharged just before school started, although I kept her home for a week to get used to being...
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It’s New Ear Tubes Day!
Hooray – it’s new ear tubes day!!!! Finally after far too long of a wait, Ladybug is getting new ear tubes put in as I write this. We’ve been incredibly fortunate to keep her healthy and germ free...
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It’s PURPLE DAY!!!!
Today, March 26th marks the international day for Epilepsy Awareness. My very first post about today was back in 2013. I always find it interesting to look back on my previous posts and see how far we...
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World CDG Day
I can’t believe how fast one year has gone by. I remember writing about the very first CDG Day last year, a few things have changed some good – some not so good. The one constant is that my little...
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Our Western Adventure with Juniper
Things have been pretty quiet on this page for a few months. The biggest factor was I was in full blown planning and packing mode for our summer adventure to the western USA. It was an incredible...
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We Are Not Alone
Nearly 3 years ago, I shared with all of you how my daughter was injured while in the care of a home health worker. Getting that call was one of my worst fears. It was very difficult leaving my...
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